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Stevie Ray Kwon posted
at 6:19am on May 13, 2008

Hi folks, I am writing you to urge you to: write-fax-e-mail your elected officials, especially your local House member. And please, pass this along to any... More... Hi folks, I am writing you to urge you to: write-fax-e-mail your elected officials, especially your local House member. And please, pass this along to anyone you remember as a Jawbox-Burning Airlines-Channels fan! Get your friends and family to write in! As you probably all know, Jay Robbins has a very sick baby boy, Cal. Cal is doing well for a baby diagnosed with SMA. And a lot of breakthroughs are being made in SMA research. There is a bill currently in the House and Senate called the SMA Treatment and Acceleration Act. If the SMA treatment act is passed, then much more money will be put into research, and certain therapies will actually be put into clinical trials! Then perhaps, an effective treatment and even a cure can be found. Maybe Cal and others like him could live a reasonable comfortable and normal life. It's important that this bill is passed relatively soon, after the November elections this bill will probably get lost in the shuffle of a new congress, and be put in limbo. So, it is urgent to try to contact your representative and senator and get them to co-sponsor this bill. But Wait! OOPS! Big news! You don't need to write your senators! Both Senators Boxer and Feinstein have signed on as co-sponsors, just a few weeks ago. So, please, take a few minutes and a few cents on stamps. Write a letter (which still carries more weight than an e-mail) send a fax, or at least send an e-mail! Urge your representatives to sign on as a cosponsor. This bill looks as if it might actually have a chance of passing if enough Senators and Representatives, sign on as co-sponsors. This is a non-partisan issue, because SMA doesn't care how you vote! You can read more about it and have it explained better to you than I could ever possibly hope to explain it at these addresses: You can find more information here, as well as a form letter which you can modify at this address: http://www.fightsma.org/index.php?congressional_info Find your Congress member's contact info here: http://www.house.gov/ And more info and general updates on Cal Robbins (Regularly updated by J. Robbins) can be found here: http://callumrobbins.blogspot.com/ Jay Robbin's has made and worked on so much music that has rocked my world, that I feel like it's time to do my part to help him and his family out. rock on-Steve

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A friend posted
at 3:07pm on January 13, 2008

choca wacka!

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