Why do you share your genetic information?
I\'m the Director of Communications for Genome Alberta a not-for-profit genomics research funding organization. In addition to my communications role I\'m also part of our National GE3LS team (Genomics Ethical, Environmental, Economics, Legal and Societal ), have co-authored a piece for the American Medical Association Journal of Bioethics, and was a contributing author to a recent atrticle in Nature:Biotech on Science Communications. I\'ve also had my genotyping done by 23andMe,deCode,Navigenics, and the DNA Ancestry Project.rnSo disclosure out of the way.rnI\'m speaking at an Electronic Health Information and Privacy conference in Ottawa,ON, Canada in November and need some thoughts from the community.rnYou won\'t be quoted by name and I certainly will ensure that any possible identifying features are removed.rnWhy do you share your genetic information?rnWhat are you fears about sharing such information?rnWhat safeguards do you think should be in place to protect your information on a broader scale ?rnFeel free to post or reply in any manner you wish.rnI can pass on my work e-mail to anyone who feels they would like to reply that way. I\'m on Twitter as @mikesgene , and we have a place to post and comment on Facebook at http://facebook.genomealberta.carnrnLooking forward to your thoughts and I\'ll be posting a similar note in the Health and Traits section though there will be a variation on the question.rnrnThanks,rnrnMike SpearrnGenome Albertarn#115, 3553-31st N.W.,rnCalgary, AlbertarnCanada
Share this question with your friends
Related news stories
- Genetic Testing Information - Too Much or Too Little ?
- A Fundamental Right to Genetic Information (Now More Expensive Than Before)
- Disclosure of Patients’ Genetic Information Without Their Consent–Is the “Public Interest” Really a Sufficient Justification?
- How will medicine and its regulation adapt to the information age?
- How will medicine and its regulation adapt to the information age?
- How will we handle the rapidly approaching flood of genomic information on individual patients and consumers?
- Picture of Health: Can genetics explain triple negative breast cancer? - Your daily dose of information on better living - baltimoresun.com
This Week's Top Questions
No recent questions have been posted
Weekly Team Leaders
Ahmed Hassan
800 pointsMlle Genevieve
370 pointsHsien-Hsien Lei
200 pointsSylvain Lapointe
200 pointsMalak Nour
200 points
NewsCloud
social media toolkit








