Together we will cure chordoma!

1. Existing treatments for chordoma are unacceptable - hope lies in the success of our coordinated international research effort
2. Patients can't afford to wait for a cure - we must be proactive and operate with a sense of urgency
3. Patients and their loved ones are the most motivated stakeholders in the treatment development process - they should be empowered to participate in th

Health - Diseases and Disease Research

Chordoma is a slow growing, relentless bone cancer that occurs in the head and spine in people of all ages. Chordoma is typically resistant to chemotherapy and radiation, and is prone to multiple recurrences. The average survival after diagnosis is 7 years; a statistic we are determined to improve.

Our Mission is to improve the lives of chordoma patients by rapidly developing effective treatments and ultimately a cure for this devastating disease. We lead a coordinated international research effort to accelerate a cure, while improving the diagnosis, treatment, and quality of life for people affected by chordoma. We serve as a bridge between patients, doctors, researchers, drug companies, government and funding agencies, representing the interests of those with chordoma, and instilling a sense of urgency in the treatment development process.

How do you cure a deadly, slow-growing bone cancer like chordoma? What questions need to be answered, what technologies need to be used, who can get the job done, what is the quickest path to a cure? These are the question we've posed to dozens of the worlds leading cancer researchers and surgeons. In May 2007, 53 of them joined us in Bethesda Maryland at the First International Chordoma Research Workshop to help us come up with the answers, and develop a roadmap for the future of chordoma research. Beyond that, they made a commitment to us, and to one-another that, together WE WILL cure chordoma.

Following the workshop, dozens of new researches are eager to work together to cure chordoma, BUT they are hindered by a lack of funding and poor access to chordoma tissue and cell lines.

Chordoma tissue and cell lines are the starting point for virtually all research; without these crucial resources research will remain at a stand-still. Therefore, our top priorities are to collect and distribute chordoma tissue through a centralized tissue repository (BioBank), and to fund the creation of high quality cell lines that can be shared with researchers around the world. Once these resources are in place the possibilities for research will be endless - limited only by funding.

Our organization (from board to volunteers) is comprised almost entirely of chordoma patients and their loved ones. For all of us, time is of the essence. We have devoted our lives to the Chordoma Foundation because we truly believe that a cure is within reach. You can help us turn our dreams for a cure into reality by donating today - please don't wait until it's too late.

Every donation accelerates the search for a cure, so please give anything that you can, and ask your friends and family to do the same. We sincerely appreciate your support. Together WE WILL cure chordoma!


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Checks can be mailed to:

Chordoma Foundation
PO Box 4562
Greensboro, NC 27404

Tax ID No: 20-8423943