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Url:http://www.fragilex.org.au/news
Author(s):Sue Bride
Language:English
Tags:fragile x, disability, australia
Description:News relating to Fragile X Syndrome
Ratings (2 Ratings)
Popularity:19 Followers

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Christmas Cards
We are once again selling our Association Christmas Cards. This is not only a fundraiser as by sending these cards, which each contain a short explanation about Fragile X, you will also be increasi...more
2009-11-05
Release of the National Mental Health and Disability Employment Strategy
On 14 September 2009, the Parliamentary Secretary for Disabilities and Children’s Services, the Hon Bill Shorten MP, and the Minister for Employment Participation, Senator the Hon Mark Arbib,...more
2009-10-26
New from NFXF
As well as keeping up with National Fragile X Foundation announcements and news on their website you can now follow their news via the new NFXF Twitter page FragileXnews If you would rather read th...more
2009-10-05
fx info Newletter Spring 09
HighlightsFrom November 6th to November 14th the Fragile X Association is having a series of Fragile X seminars and familyforums with Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Med...more
2009-10-01
Carers Week 2009
Monday 19th October marks the start of Carers Week 2009. Carers Day 2009 is on Tuesday 20th October. Carers Week is aimed at celebrating and acknowledging the vital role carers play in our society ...more
2009-09-30
NFXF Webcasts
The National Fragile X Foundation has been producing audio webcasts covering various aspects of Fragile X. They are available to listen to from their website on the Prior Audio Webcasts pageTopics ...more
2009-09-30
Wynnum Spring Festival Supports Fragile X
We are pleased to report that the Fragile X Association of Australia has been chosen to be the main beneficiary of the proceeds from the Wynnum Spring Festival. The festival held in Wynnum, in the ...more
2009-09-28
FRAGILE X UPDATE NOVEMBER SEMINARS
In November the Fragile X Association of Australia are hosting Fragile X Update seminars in Melbourne, Sydney and Brisbane.  Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Inve...more
2009-09-23

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Facebook UserJan 10

What are we going to do Sue.. blog.. or upload our own blogs to this group??

Shall I start and introduce myself... I am Janine and mum to two Fragile X boys. Geoffrey has just turned 21 and Peter will turn 21 in March. Geoffrey is my own son and Peter is my foster son. I am a child and youth mental health nurse and my husband is a special Ed teacher. I also have a daughter, Katherine who is 19. Greg has two older children, Jeff and Heather who have their own families.

Not sure what else to write.. but hey.. someone has to start :-)

Janine.
 
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